Parenting Skin Diaries

This 6-Year-Old With Albinism Won’t Let the Sun Slow Him Down

When our son Carter was 11 months old, we found out that he had Oculocutaneous Albinism Type 2. (Or OCA2) What that means is that he has less pigment in his eyes, hair, and skin. So basically, it’s the reason for his insanely cute blonde hair and eyelashes. But it’s also why we made protecting his skin a main priority. After the diagnosis, we soon learned that Carter’s chances of getting skin cancer were greater because of his Albinism. That word. Cancer. As parents, hearing that was terrifying, but it also made us want to do whatever we could to keep him (especially his skin) safe.

When we found out about this, we were a month away from going on our first family vacation to the Virgin Islands. We met with a dermatologist who stressed the importance of sun protection. He talked to us about sunscreen and told us not to forget areas like the scalp and the tops of Carter’s ears. I immediately began searching for the perfect hat for him to wear. We needed to know that our baby was going to be completely protected. Not only on the beach, but anytime that our family ventured outside. We didn’t want to take any chances of him getting the slightest sunburn. My mother in law was the one who discovered Coolibar, where we found so much more than a hat. We found swimwear and clothing, but most importantly we found a peace of mind.

5 years later, we are still using and loving our Coolibar gear. Not only do we have the Albinism to worry about, but our son was also later diagnosed with Autism. Due to both the Albinism and the Autism, Carter struggles a lot with light sensitivity. Being in the bright sun for too long can really shut him down and cause him to get headaches. Therefore, Coolibar’s Kids All Sport Hat is a favorite of ours. Not only does the bill of the hat help shield his eyes from the sun, but the flap protects his ears and neck from potential burning.

While we still use sunscreen, it’s hard to always remember to reapply as often as is needed. Coolibar has taken the pressure off, by providing additional UV protection. It’s nice to know that there is a product out there that meets all the needs that our boy has. When he initially got the diagnosis, we were afraid he wouldn’t get to experience the outdoors as much as we would like him to. Now, two of Carter’s very favorite things are water and adventures. Thanks, Coolibar, for allowing us to still have these experiences, worry-free.

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