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Today is Don’t Fry Day!

Dont Fry Day - National Council on Skin Care Prevention

Just before the outdoor summer festivities begin in earnest, a reminder: the National Council on Skin Cancer Prevention has designated today as Don’t Fry Day.  This annual, national campaign takes place every year on the Friday before Memorial Day to help people keep sun safety in mind.

Here are some of the ways the council recommends to keep yourself and your family healthy for the summer and for a lifetime.

 

  • Do not burn or tan
  • Seek shade
  • Wear sun protective clothing
  • Generously apply sunscreen
  • Use extra caution near water, snow and sand
  • Get vitamin D safely

The council also takes a page from Australia’s effort to prevent skin cancer and reminds you to Slip on a shirt, Slop on a broad spectrum SPF 30+ sunscreen, Slap on a wide-brimmed hat and Wrap on sunglasses whenever you’re outdoors.

It’s also important to visit your dermatologist at least once a year, and watch for new or changing moles and skin growths.

Enjoy your summer – and stay sun safe!

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Success Stories Wellness Warriors

Melanoma Survivor Timna

During Skin Cancer Awareness Month, Coolibar invites skin cancer survivors to share their stories in their own words. Hope, determination and drive to educate others play a major role in these individuals’ lives. Skin cancer doesn’t discriminate, it can happen to anyone. Prevention and early detection can be life saving! We hope you share these stories with your friends, family and colleagues. Be SunAWARE. Read Timna’s story.

I have been asked by many people about my story as it relates to melanoma, a disease that has changed me from the moment I got the call with my first diagnosis.

Here it is, in brief, with pictures to help…

I was born a baby with fair skin.

I grew up with hippie parents in the late 60s and early 70s. We lived in New Mexico and California, spending a LOT of time outside, dressed in minimal clothing.

I spent my time with my mom in Pacific Palisades, my dad in Venice, and my grandmother (Nonnie) in Marina Del Ray…on the beach.

Sunscreen was not a thing then…at lease that I knew of. It was all about just being outside, in nature.

(I know, weird that hippies let their kids play with toy guns…but they did)

Fast forward (but NOT to forget the 20+ years of sun loving, laying out, skin burning, beach going, roof-top pool visiting, and much more)……

At 38, I was sitting on my bed, studying the bottom of my right foot. Yes, I can see the bottom of my feet. Maybe it’s the yoga, but really I think it’s just my body…because below you will see me, at age 4, eating my foot…..

So, yeah…I was inspecting my right foot and saw a TINY black speck. I actually thought it was a baby tick, and with my fabulous surgical skills, I proceeded to remove the “tick” with a cuticle clipper…GROSS, I know. It was done. The “tick” was out and life went on….until a few weeks later while catching another good look at my foot, I noticed this black speck was back. Somewhere in the back of my head I remembered hearing the words, “If you have a freckle on the bottom of your foot, it is not a good thing.” And I knew I needed to get to my dermatologist ASAP.

I got in as soon as I could, seeing a physicians assistant, who removed the dot and told me to have a good weekend.

Over a week later, a nurse called me. She starts talking to me….about melanoma…my oncologist (I DON’T HAVE AN ONCOLOGIST)…my appointment for blood work and chest x-rays at UNC…surgery…cancer center. I left my body at those words. And when I came back, I told the nurse she needed to stop talking because I was not hearing her, and that I needed to get a pen and paper to write all of this down. This is not real! It’s JUST SKIN! Why x-rays and surgery and new doctors, etc? I mean, it is just about skin, right?

It was then I quickly became an expert on all things melanoma. I knew that when my oncologist LOUDLY stated to me, “THIS IS SERIOUS!” that my life was changing fast and forever.

Fast forward (but NOT to forget the dermatology visits every 3 months with multiple biopsies, most of which coming back severely atypical and needing further excision, the anxiety, fear, post traumatic stress, obsession with checking my moles all day long, 3 months for the hole in my foot to close after the wide excision, and the incision in my groin to heal after the lymph node biopsy, and more fear, and more terror, and, and, and……….oh, and practicing safe sun in all ways)

Three years later (no, I didn’t reach the 5 year mark. so bummed!) I have my second melanoma. This one is on my right forearm, found at one of my regularly scheduled dermatology visits. Back to fear, back to crazy, back to wide excisions.

And then, a few months ago, I started seeing flashes of light in my left eye. So I decide to study my eye ball, something I had never done in the past (surprising!). And sure enough, I see THE TINIEST dark fleck on the white on my eye, and I sink into melanoma fear knowing that tomorrow I will be in my eye doctor’s office no matter how booked and busy she is.

My eye doctor tells me that what I had found were just a few pigmented cells. Well, after you have had melanoma, the words PIGMENTED CELLS don’t jive well, no matter how few there are. She tells me it’s nothing, but that if I want to see an eye tumor specialist because I’m “so anxious”, she would make the call. OF COURSE I WANT HER TO MAKE THE CALL!

After weeks of waiting to get in with the eye tumor guy, and after a FIVE (yes, FIVE) hour appointment of dilation, pictures, exams, different residents, I finally got to see THE specialist, who tells me this: “The reason you came in here today is actually fine, but right next to it is something called Primary Acquired Melanosis, and because of your history with melanoma, we are not going to wait and watch, we need to biopsy it and freeze around the area.”

Um…with shock having taken over, I blurted out, “ARE YOU KIDDING ME?” The thought of a portion of my eye ball being cut and frozen and…It’s all just too much. I break. I break down right there with this nice eye tumor specialist and his nurse. I just sob.

When I went for my 6 week post-op visit I was overflowing with joy to be given the green light on returning to contact lenses. Ready to run out of the office and home to my little, delicate, disk-shaped, polymer wonders that I have missed so much. I was told that I would need to be refitted in my left eye for lenses…because my eye is forever changed.

A new set of eyes? Hmm. Yeah, I can see that. A piece of eye taken out = shape changed forever. And it was then I realize that not only is my eye changed forever, but I am.

And so it is with these experiences, and this new life, that I hope to raise awareness and help to educate others about what might just be something they can hear about rather than experience it firsthand.

As the summer is fast approaching, I am now in planning mode for a 7 week trip to Europe (to include MANY beaches)!  Here is how I do this with melanoma on my mind…I gather up loads of sunscreens, hats, UPF clothing, parasols, etc…and GO.  You can check out my packing list on Respect the Rays!
Wherever you go, you can do it with sun safety in mind!  Whether it’s the pool, the park, the beach, an island, whatever, always practice safe sun!

-Timna
Founder of Respect the Rays

“Out of difficulties grow miracles.”
~Jean De La Bruyere

A special thank you to Jen Jones and Cynthia Hornig of Women You Should Know who introduced us to Timna and her inspirational story of survival.

 

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Success Stories SunAWARE Wellness Warriors

Melanoma Survivor Tim

During Skin Cancer Awareness Month, Coolibar invites skin cancer survivors to share their stories with us in their own words. Hope, determination and drive to educate others play a major role in these individuals’ lives. Skin cancer doesn’t discriminate, it can happen to anyone. Prevention and early detection can be life saving! We hope you share these stories with your friends, family and colleagues. Be SunAWARE. Read Tim’s story.

Like the day my wife and I were married, and the days our children were born, Thursday, August 18, 2011 will forever be burned into my memory. We were on vacation in Maine. My wife, son and I were leaving to sneak in nine holes of golf before the day was over when I got the call from my doctor. He confirmed that the suspicious looking mole on my arm was melanoma. Melanoma, the deadliest form of skin cancer, was on the top of my right forearm. Wow. The prognosis was good, the melanoma was .62mm in depth (generally if the melanoma is thicker than 1mm it is more likely to have spread) and therefore was considered an “early stage” and would require an excision surgery to remove surrounding tissue to check for spreading. I was scheduled for this surgery just five days later and although the surgery showed that all of the melanoma was removed, the pathologist suggested another surgery to obtain the proper margins; 1 cm of clean tissue around the melanoma is required to be removed and be clear of cancerous cells for a pathologist to consider it a clean excision. A month later, I had another excision surgery and this time the margins were met. My doctors determined that with these successful surgeries, no further treatment would be necessary at the time.

The physical healing is progressing well; the mental and emotional healing will take a bit more time. A cancer diagnosis is a very scary. This disease can strike at any time, to anybody without prejudice. It can take your world and turn it upside down. Support of friends and family is critical.

I am currently scheduled for full-skin examinations every three months for the next three years. If I am fortunate enough to not have a re-occurrence of melanoma, then I will move to six month examinations and eventually annual examinations.

My diagnosis not only came as a shock to me, but because melanoma can be hereditary, my family was impacted. They scheduled skin exams since their risk was now elevated. As a result, my older brother recently had a procedure to successfully remove a squamous cell carcinoma, a non-lethal form of skin cancer but alarming just the same. With a new outlook on skin protection for my family and myself, I am very thankful for my early detection and now am focused on keeping us all sun safe. There is an acronym being used now concerning the prevention and detection of skin cancers, SunAWARE. A=avoid unprotected exposure to the sun, W=wear protective clothing and hats, A=apply broad-spectrum sunscreens year-round, R=routinely check for changes in your skin and E=educate yourself and family about sun protection.

I have been working on farms and in the construction industry since I was 13 years old. The days of my youth were as many others, careless and carefree. I was never a lay around in sun kind of person but kind of lived my life with the motto “no shoes, no shirt, no problem”. Always outdoors and rarely protected! Eight years ago, with the passing of my friends father from cancer, a group of friends and I signed up for the Pan Mass Challenge to raise money and awareness for the fight against cancer. This event, which is the most successful cancer fundraiser in the nation, was started by a gentleman named Billy Starr after losing his mother to melanoma back in 1980. It is this event that had brought so much good in my life. It became an annual tradition my whole family took part in. The event was most likely caused the damage to those skin cells on my arm. The top of your forearm is 100% exposed while riding a bike. I am on my bike hundreds of hours a year riding over 2000 miles in preparation and before 2010 was completely unprotected from the sun. I have included a picture with my family form the 2012 ride (pictured above) and for the record; I removed my Coolibar Full Zip Bike Jacket a mile from the finish so I could cross the finish line with my team jersey.

Now, as a 42-year-old father of two and an outdoor enthusiast with activities that take me through all 12 months of the year, the protection of my family and myself has become a daily occurrence. Our leading defense against the suns damaging rays is with UV protective clothing and sun protective lotions for the exposed skin. I am similar to most, once I received my diagnosis I enveloped myself with what melanoma is, every aspect of it’s being and mostly how to prevent a re-occurrence, or in my families case an occurrence! That is how I found Coolibar — my leading defense against re-occurrence. I cannot be found outdoors with out a piece of clothing with that distinct logo on it. My other line of defense is sun protection lotion and I have found another ally in that battle, the Environmental Working Group (EWG). The EWG is the nation’s leading environmental health research and advocacy organization. Their mission is to serve as a watchdog to see that Americans get straight facts, unfiltered and unspun, so we can make healthier choices and enjoy a cleaner environment. I research different products on this site for me and my children, and then can usually find those products on the Coolibar website.

As previously mentioned, my diagnosis has rippled through my family and friends. My brother successfully had squamous cell carcinoma removed and is currently on a yearly check up. My children’s pediatrician is on heightened alert to anything that might be remotely suspicious. Most of my friends have gone to a dermatologist for a skin check and have also increased their protection levels. I am not one to soap box, but when it comes to skin cancer awareness, I will stump all day. So many cancers are not preventable and although melanoma might fall into this category we can all greatly diminish our risk. It is becoming increasingly easier in this country to protect yourself, your friends and loved ones, so why wouldn’t we? Awareness over the last five years has significantly skyrocketed. In 2011 the FDA issued new requirements for over-the-counter sunscreens concerning their labeling with regard to their protection levels, what type of UV protection they offer, the terminology used like “sunblock” and “waterproof”. The ability to be protected is ever-present. My hope is that everyone absorbs as much information as they can and use it to protect themselves and their families.

This year I will be adding another acronym to my list, the ABCDE’s of skin cancer. This acronym is concerning moles on your skin and what to look for: Asymmetry (each of the mole’s halves should be identical. Is the mole flat or raised)
; Border (an irregular border is abnormal)
; Color (dark and/or multiple colors signify a potentially dangerous change)
; Diameter (if the mole is larger than a pencil eraser, it may need evaluation)
; Evolution (a sudden change in the mole can indicate a problem).

Tim

“I’m not a dreamer, and I’m not saying this will initiate any kind of definitive answer or cure to cancer, but I believe in miracles. I have to.” …. Terry Fox, October 1979, in a letter requesting support for his run

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SunAWARE

Isn’t it Time to Live SunSmart?

This month is Melanoma Awareness Month, which provides an excellent opportunity for foundations such as ours, LiveSunSmart.org, to educate the public about the importance of living “Sun Smart.” We know that melanoma is very curable when caught early, but we want to teach everybody ways to minimize their risk when out in the sun without curtailing the fun! It’s pretty simple, actually, we know that staying in the shade and avoid the peak sun hours when possible isn’t always realistic, so use your sunscreen every day, and reapply it often. Wear hats – with the big, wide brims if possible–wear sunglasses and protective clothing. Get your skin checked regularly, learn the signs of melanoma and most importantly make sure your friends and family do the same!

But, melanoma awareness isn’t just limited to the month of May. We want you to protect yourself year-round by making the proper application of sunscreen a routine part of your day, and encourage your family and friends to do the same. That means whether you are on the ski slopes or the beach, the athletic field or the construction site—if you are spending time outdoors eating, recreating or spectating, sun protection is essential. We are all at risk because skin cancer does not discriminate against color, race, ethnicity or gender.

At Live SunSmart.org, we are passionate about our mission and work diligently throughout the year to educate everyone on the importance of early detection and the prevention of melanoma. The foundation honors my father Ray—an athlete, community leader and friend to many—who tragically lost his battle with melanoma at the age of 53. Ray loved interacting with everybody and the best way to celebrate his life is to create a dialogue about skin cancer prevention that could save others.

Nobody should ever have to suffer from skin cancer the way my father – and consequently all of us – suffered. Just a few simple steps integrated into your daily life can change behaviors that may reduce your risk.

The best way to safeguard your skin is to:

• Wear a broad spectrum sunscreen of at least SPF 30 every day
• Apply properly and reapply often
• Wear protective clothing, hats and sunglasses
• Get annual skin cancer screenings
• Tell your family and friends to do the same

At LiveSunSmart.org, we offer a variety of programs to inform the public about easy steps to safeguarding one’s health.

Did you know that UV radiation can damage the eye, affecting surface tissues and internal structures, such as the cornea and lens? Long-term exposure to UV radiation can lead to cataracts, skin cancer around the eyelids and, in some cases, can contribute to ocular melanoma. Our Look SunSmart™ program, encourages people to wear sunglasses year-round to protect your eyes and the surrounding skin areas from UV light.

Another program, Team SunSmart™, was designed to promote the health and wellness of student athletes by making the application of sunscreen a normal pre-game routine. After all, athletes often are outside participating in sports during the peak sun exposure hours. Packing sunscreen in an athlete’s equipment bag should be as important as packing cleats, water or a sports drink. A change in a student athlete’s behavior now will ensure a healthier future since anywhere from 23% – 75% of our lifetime UV exposure occurs before the age of 18.

Ski SunSmart™ works with ski resorts, outdoor winter sports pavilions, and skiing and snowboarding organizations to encourage winter sport enthusiasts to make the application and reapplication of sunscreen a normal routine on the slopes. At 8,000 feet above sea level, you are exposed to 40% more UV radiation than you are at sea level.

Another exciting program we have aims to educate non-medical and salon professionals to recognize the signs of melanoma. Pro SunSmart™ trains these professionals to spot signs of change in their regular customers or notice unusual moles in new customers. Whether it’s during a back adjustment, massage, physical therapy session, athletic training, shampoo and styling, or a pedicure, these professionals have the opportunity to visually examine our backs, scalps and bottoms of our feet.

Throughout the year, we offer on-site school and workplace skin screenings with Board-certified dermatologists. This health initiative helps to demystify the screening process and to broaden everybody’s awareness about the necessity of annual skin checks. So far, we have detected dozens of cases of skin cancer, several of which were melanoma.

There are so many positive benefits to spending time outdoors in the sunlight. At LiveSunSmart.org, we want to create awareness about melanoma and all skin cancers, without creating fear by offering you realistic strategies that allow you to live a sun-compatible life. That’s why we call our annual gala, Celebrate Living SunSmart! This year’s event, which helps support the development and implementation of our family of Live SunSmart programs, will be held on May 30th at Maritime Parc in Liberty State Park, NJ. We will be honoring NFL Coach and CBS NFL Today analyst, Bill Cowher for his tremendous efforts to educate the public, especially men, about the risks of melanoma. As a testament to his diligent work, NFL Commissioner, Roger Goodell will be on hand to present the Apollo Award. Set against the backdrop of the amazing New York City skyline, the gala promises to be a wonderful night of excellent food, entertainment and awareness.

If you would like to learn more about our organization, support our efforts or attend our Celebrate Living SunSmart Gala, please visit www.livesunsmart.org.

Teri Festa is Executive Director and Founder of LiveSunSmart.org, formerly known as the Ray Festa Melanoma Foundation, based in Montclair, NJ.

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Success Stories SunAWARE Wellness Warriors

Melanoma Survivor Capt. Harry

During Skin Cancer Awareness Month, Coolibar invites skin cancer survivors to share their stories with us in their own words. Hope, determination and drive to educate others play a major role in these individuals’ lives. Skin cancer doesn’t discriminate, it can happen to anyone. Prevention and early detection can be life saving! We hope you share these stories with your friends, family and colleagues. Be SunAWARE this month and all year long. Read Capt. Harry’s story below.

I am fifty years old and run a saltwater charter fishing business out of O’Neill’s Marina in St. Pete, Florida. I had always spent a lot of time on the water, but not like this. In 2005, I started going to the dermatologist two times a year. In March of 2012, the dermatologist told me to keep an eye on a spot in the upper middle of my back, not to worry about it, but just watch it. This spot was in a place that I could barely see, even with two mirrors. I made the mistake of forgetting to tell my wife what the doctor said about keeping an eye on that spot.

While on a vacation in October, my wife noticed that spot on my back and said it did not look right. I went to the dermatologist in early November and the doctor said it was great that my wife noticed the spot. It did not look right to him and a biopsy was done.

I was on a fishing charter just off St. Pete beach when the doctor’s office called and told me that I had a Clark Level 3 Melanoma and to schedule an appointment with Moffitt Cancer Center. I didn’t know what to think. I was scared, angry, nervous and just wanted to get off the boat. As much as I tried not to let my clients know what that phone call was about, I’m sure they noticed a change in my attitude. I was so mad and angry that I told my wife that evening, “I don’t want to tell anyone about this, that it was my business, and it stays between us.”

We were reading everything we could about Melanoma and Clark Level 3 diagnosis. All this information was making the both of us more anxious, nervous, scared, angry and upset. Knowing and keeping this a secret was not the right thing to do. After a week or so, we agreed to tell two of her brothers that live close to us and my dad, and at some point my brother and sister who live in other states.

After Thanksgiving, we met with our team at Moffitt Cancer Center, and they told us what the procedure would be and scheduled the surgery for December 13th. While in a tree stand hunting one morning, I finally came to grips with what was going on and decided it was fine to talk about it, and totally changed my attitude. It took me three weeks to get to that point, but the anger was gone. I was still anxious and nervous, but not mad and angry.

After sitting in that tree for three hours, I got down and took a walk through the woods. I came upon a guy who was spraying invasive plant species to get rid of them. We talked for four hours and while talking he tells me that his wife went through breast cancer and Moffitt Cancer Center helped her beat it. She was cancer free and doing great. After about three hours, I told him I had just come to grips with my diagnosis, and I told him about it. He asked if it was alright with me if I would join him in a prayer for me. I told him it can’t hurt, so we prayed. It really was something that I ran into this man just after coming to grips with my situation.

I went in for the surgery on the 13th, and the first step was to inject a dye around the biopsy area to determine where and if the cancer had gone to any lymph nodes. The dye showed that it had gone to one lymph node in my left armpit and three in my right armpit. The surgery went well and they removed one under my left arm and three under my right. They also removed a large area around the biopsy. They scheduled my follow-up visit for December 31st. It was going to be an anxious two and a half weeks waiting for the lab results. After about ten days, my wife said let’s call and get the lab results. This was an anxious call but a great one. The nurse told me that all the lymph nodes came back negative and all of the area around the biopsy was also negative. Hallelujah! Christmas was so much better.

Words to the wise:

I had never heard of Coolibar before having to research melanoma and UPF clothing. Living and boating in Florida, you are going to be in the sun. I think, like myself, a lot of people have never heard of Coolibar. I spend over 200 days on the water, and clients as well as others in my industry, pay attention to what others are wearing. Regular cotton tee shirts just will not hold up, so people need to see others wearing sun protective apparel. Lead by example.

Capt. Harry

Capt. Harry’s Website: Hook Em Harry

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SunAWARE Wellness Warriors

Melanoma Survivor Lauren

During Skin Cancer Awareness Month, Coolibar invites skin cancer survivors to share their stories with us in their own words. Hope, determination and drive to educate others play a major role in these individuals’ lives. Skin cancer doesn’t discriminate, it can happen to anyone. Prevention and early detection can be life saving! We hope you share these stories with your friends, family and colleagues. Be SunAWARE this month and all year round. Read Lauren’s story below.

My name is Lauren, and I am 25 years old.  I grew up in a small Colorado town where I was devoted to my family, friends, and sports. I lived outside, and under tanning bed lights.  I went to college on a volleyball scholarship where my tanning addiction only got worse.  Realizing that skin care was my passion, I gave up college classes for cosmotology ones.  Sitting in my esthetics class is when I realized that I could very well be suffering from Melanoma, and I was right.  Four months after my first mole diagnosis, I completed four rounds of biochemotherapy.  Since then, I have been cancer free and plan on staying that way.

Growing up in a small town that consisted of mostly prisons, antique shops, and bars made it easy for any child to know that almost all activities were meant to be outdoor adventures.  Whether it was swimming at the local pool, riding bikes, or swinging from ropes across a creek; they were all under the blistering Colorado sun.  Back then, wearing sunscreen was advised but never forced.  Oh, how I wish it was.

It all started before I was even in high school.  I realized that my skin always turned into a beautiful tan after only a couple days of suffering a sunburn.  That was not a problem for me; beauty is pain, right?  Any chance I had to roll up my pant legs and arm sleeves to let the sun beam down on me, I took.  I can remember a handful of severe sunburns ranging from scabs on my shoulders, blisters on my legs, and even my lips, but that never stopped me.  All these imperfections would go away, and I would soon have that perfect tan.

Not only did I love to feel the natural sun shine, but I loved the fact that I could get even better results from a tanning bed. I learned that lying in a tanning bed for just twenty minutes was equivalent to laying on a beach for four hours; so I made sure to include the twenty minute sessions of UV rays into my daily routine.  Sometimes I would even let the time run out and start it all over again.  After all, I wanted to have the best “glow” at prom, be the darkest on the volleyball court, and Lord knows, I couldn’t let my true shade show during the winter.  Using tanning beds was a part of my life for nearly ten years.  I was addicted.  Nothing felt better to me than to lie in the warm bed, close my eyes, and doze off to wake up to an even darker complexion.  It was just too easy.

I attended cosmetology school to become an esthetician-someone who works in skin care and is knowledgeable in the best ways to care for the epidermis, go figure.   I remember the week we learned about skin disorders and diseases, a light bulb turned on in my head.  We were going through the ABCD’s of Melanoma, and I realized that a certain mole on top of my head had these exact characteristics, but still, I didn’t think to go to the doctor.  No one ever thinks, “Why yes, this is probably cancer.” Just like when you have a tooth ache, the last thing you think about or want to do is go to the dentist.

Lauren in her Coolibar at the Richard David Kann Melanoma Foundation Offices

A couple months had passed, and this mole was only getting worse.  My grandma finally made it clear that I had to see a doctor, so I went just a couple days later.  I explained to the dermatologist what this mole was doing.  Whether it was oozing, bleeding, or peeling, something was not right.  Without hesitation, the doctor insisted a biopsy be done.  He numbed me and removed it faster than I could say, “Ouch.”  One thing that still pops into my mind when I think about this appointment is near the end of the visit, he told me that he would pray for me.  What?  I’ve never heard a doctor say that.  Did he know something was wrong?

About a week later, the phone finally rang and it was the call my family and I had been waiting for.  We were sure it was nothing, that he would have only good news to tell us.   How wrong we were.  The mole he had removed was a Melanoma, a Stage 4 on the Clark Scale.  He pointed us in the direction of a head and neck surgeon to have a wide excision done on my scalp, as well as a sentinel node biopsy.

Before this procedure, the surgeon was confident that there would be no spread.   He told us there was only a twenty percent chance it would have gone anywhere.  With this statistic, it was easy to feel the slightest bit of comfort.   The surgery went well, but there we were again, waiting.  Another week had passed, the phone rang, and everything changed.  I remember like it was yesterday; he said, “We did an amazing job on your scalp, the margins were perfect and there was no Melanoma found.  But, they did find a little Melanoma in the sentinel node.”  Getting that news once is hard enough, but twice?  There are no words to explain.  I was back under the knife exactly a month later for a complete neck dissection to remove all remaining lymph nodes, and I was officially a Stage III Melanoma patient.

Just nine days after the dissection, I was admitted to UCH in Denver for my first round of biochemotherapy, the most aggressive strategy against Melanoma.  This consisted of three types of chemo, and two bio medicines.  I was hospitalized for five days with a twenty-four hour drip.  I would have two weeks in between cycles, so just enough time to feel almost normal, and then it was right back to where I started.  I completed four of these cycles, and I am so thankful to know that biochemotherapy cannot be done twice.  Nothing makes me happier than to know I will never have to go through that again.

Recovering was hard; I was weak, and I am still weak.  But, my attitude and outlook have never been so strong.  I never let the thought of death cross my mind; it was not an option.  No matter how miserable I was, or how alone I felt, I knew that this was just a huge lesson for me, for people I love, and for people I’ll soon meet.  I couldn’t have fought this battle without all the love and support from my family and friends, especially my mom and dad.

I strive to be a role model for others that have dealt with or who are dealing with Melanoma:   patients, patients’ families, friends, neighbors, anyone who has been affected.  Understanding this disease and how to prevent it is crucial, and I am ready to spread the awareness and make a difference. Know your skin.  Check your skin.  Love your skin.

Lauren

Lauren and her mother at the Richard David Kann Melanoma Foundation Fashion Show Fundraiser 2/12/13
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Events SunAWARE

Skin Cancer Awareness Month 2013

May has been declared Skin Cancer Awareness Month by the Centers for Disease Control. They remind us to increase awareness of the importance of the prevention, early detection and treatment of skin cancer. Each year, approximately 2 million persons in the United States are diagnosed with non melanoma skin cancers. Exposure to ultraviolet (UV) radiation and a history of sunburn are preventable risk factors. With a little pre-planning it is easy to be sun safe all season long, and we’ve gathered a few ideas to help get you started.

1. Be SunAWARE and Be Safe! Use the easy to remember SunAWARE acronym to help keep in mind all the steps needed for sun safety. Remember it, use it and share it!

2. Get a Free Skin Cancer Screening at the Road to Healthy Skin Tour. The Skin Cancer Foundation’s Road to Healthy Skin Tour will make its way across the U.S. The mobile Tour kicks off in New York City in May for Skin Cancer Awareness Month. Check the Tour Schedule to see if it’s visiting your community.  If you go, say hi to the Tour event managers, Chris and Christie, protected by Coolibar Sunwear.

3. SPOT Orange™ on Melanoma Monday.  The American Academy of Dermatology designates the first Monday in May as Melanoma Monday and asks you to SPOT Orange™ to raise awareness of skin cancer. Visit the Academy’s website to find free screenings in your neighborhood.

Coolibar proudly supports the AAD’s SPOT Orange™ Skin Cancer Initiative and you can too.  We donate $10 for every Coolibar UPF 50+ SPOT™ Tee sold.

Coolibar UPF 50+ SPOT T-Shirt Coolibar UPF 50+ SPOT T-Shirt

 4. Attend a Skin Cancer Prevention Event.  Throughout the country there are walks, runs and golf tournaments that all benefit skin cancer prevention efforts. A few of our favorites are MRF’s Miles for Melanoma, MIF Safe from the Sun and the Stay Out of the Sun Run in MN.

5. Celebrate Don’t Fry Day. The National Council on Skin Cancer Prevention declares the Friday before Memorial Day (May 24, 2013) as “Don’t Fry Day” to encourage sun safety awareness. Because no single step can fully protect you and your family from overexposure to UV radiation, follow as many tips as possible.

Do you have other suggestions?  Share how you plan to make May and the rest of your summer sun safe. ‘Leave a reply’ below or visit our Facebook page.

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Educate Others Expert Rx

Don’t Fry Day 2012 is Friday, May 25th

Board Certified Dermatologist Dr. Cynthia Bailey tells you how to avoid sunburn and make the most of your Memorial Day Weekend.

Memorial Weekend traditionally marks the unofficial opening to sunburn season and the Friday before has been officially declared Don’t Fry Day. It’s a preemptive strike to put sun damage front and center in your mind. The National Council on Skin Cancer Prevention wants you to be sun protected; they want you to practice sun safe behavior, teach it, talk about it, and make it as American as apple pie.

You or your loved ones double your risk of getting melanoma (the potentially deadly big C skin cancer) with:

– One severe sunburn in childhood
– 5 or more sunburns as an adult

Yep, really!

From now until mid-October I’ll see sunburned skin in my office, at the grocery store, walking around town, and everywhere I go! You know from experience that it’s so easy to “forget” sun protection or to lose track of time at a graduation, wedding, BBQ, softball game, pulling weeds in the garden, etc. It’s why you need to expect it. You’re going to end up in the sun longer than you think, so you need to always be prepared in advance.

There are 5 simple steps for smart sun protection. Do them every day for yourself and your family:

  1. Apply broad spectrum SPF 30 or higher sunscreen.
  2. Wear sun-protective clothing to cover your skin.
  3. Wear a broad-brimmed had (not visor or ball cap).
  4. Wear UV-blocking sunglasses.
  5. Always be in the shade when you can. (Who are those people sitting in the direct sun at ball games and the beach?)
A sun safe paradise!

You also need to know that it takes extra resolve to sun protect. Culturally, sun bathing and tanning have been associated with a sense of well-being and the good life. It’s even addictive. I know; I was an addicted tanner until the big reality check that came in my dermatology residency in San Diego: cutting off skin cancer after skin cancer on people just like me. (Click here to read my story Tanning Addiction: Dermatologist’s Personal Story.) A lot of people still haven’t gotten “the memo” and justify their “actinic indiscretions” in the name of vitamin D. Sadly, it’s job security for my kind, so don’t do it.

Heavy-hitting organizations have taken up the charge to change Americans’ behavior. Groups like the American Cancer Society, National Cancer Institute, US EPA, and other federal departments have teamed up to get sun protection front and center on your mind this summer. It starts with Don’t Fry Day and the Memorial Day weekend. See the team that makes up the National Council for Skin Cancer Prevention and No Fry Day. If you’re an educator, sign up for the EPA’s Sunwise program to get educational resources for your classroom and a chance to win a real-time TV monitor and other teaching aids for your class.

You can also find additional educational resources at SunAWARE.org.

Have a happy Don’t Fry Day!

Remember the broadspectrum SPF 30+ sunscreen!

Stock up on sunscreen before Memorial Weekend. Coolibar is offering 15% off all CoTZ sunscreen for a limited time only!

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School sun safety SunAWARE

Gearing Up for Skin Cancer Awareness Month

May has been declared Skin Cancer Awareness Month by the Centers for Disease Control. Each year there are more new cases of skin cancer than the combined incidence of cancers of the breast, prostate, lung and colon according to the American Cancer Society. Take advantage of the wealth of skin cancer prevention resources available next month so you can become SunAWARE and help prevent and detect skin cancers.

1. Start out May with a free skin cancer screening.

The American Academy of Dermatology (AAD) designates the first Monday in May as Melanoma Monday (5/7/2012). Dermatology offices often provide free skin cancer screenings. Find a free skin cancer screening on the AAD website or by calling your local dermatology office.

Additionally, this year, the AAD will launch their SPOT Skin Cancer™ public education initiative on Melanoma Monday. The initiative aims to educate the public about skin cancer and promote positive behavior to prevent and detect skin cancer. SPOT Skin Cancer™ also will position dermatologists as the experts in the prevention, diagnosis and treatment of skin cancer.

2. Walk or run to support skin cancer research.

Register to walk or run and raise money in support of skin cancer research through the Melanoma Research Foundation. Search for an event in your area, or create your own Miles for Melanoma event. Miles for Melanoma events take place across the United States and are hosted by volunteers.

3. Register to win school sun hats from Coolibar.

Coolibar is giving away up to 50 school sun hats to five winning classrooms across the United States. Download the contest form or enter online. Contest deadline is May 11, 2012.

4. Kick off your summer with Don’t Fry Day.

The Friday before Memorial Day (5/25/2012) is deemed Don’t Fry Day by The National Council on Skin Cancer Prevention. The purpose is to remind everyone to protect your skin while enjoying the outdoors.

5. Pledge to follow these simple steps of SunAWARE to prevent and detect skin cancers all summer.

Avoid unprotected exposure to sunlight, seek shade, and never indoor tan.

Wear sun protective clothing, including a long-sleeved shirt, pants, a wide-brimmed hat, and sunglasses year-round.

Apply recommended amounts of broad-spectrum sunscreen with a sunburn protection factor (SPF) greater than or equal to 30 to all exposed skin and reapply every two hours, or as needed.

Routinely examine your whole body for changes in your skin and report concerns to a parent or healthcare provider.

Educate your family and community about the need to be SunAWARE.

If you have any ideas, suggestions or events on skin cancer prevention, please share them with us.

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SunAWARE Wellness Warriors

Stay Out of the Sun Run 2011

On May 20, 2011, the Stay Out of the Sun Run (SOSR) Foundation held their 6th annual walk/race in Rochester, MN to promote awareness of the dangers of sun exposure and support melanoma research and education.  All proceeds from the SOSR are donated to the Mayo Clinic Cancer Center for melanoma research and education. Coolibar was there to contribute to the run for the 5th consecutive year.

The founder of the SOSR, Tim Burriss, a Melanoma survivor, started the run to benefit melanoma research and education. He states that this year’s run had a record number of registered participants, 934! The most they’ve ever had. Not even the dreary, rainy weather before the event kept people away.

So far, not counting this year’s totals, the run has raised over $120,000 to help Mayo Clinic fight melanoma. Tim says, “Melanoma has had such an impact on so many individuals and families and we realize we cannot be content but must continue our fight!”

Skin cancer education and prevention is so important, especially with summer almost being here. So this Don’t Fry Day, May 27, Coolibar wishes to remind everyone to be SunAWARE and protect yourself from the sun.

Avoid unprotected sun exposure; Wear sun-protective clothing, wide brim hat (3” brim or greater), and UV sunglasses; Apply broad-spectrum sunscreen of SPF 30 or higher every two hours while in sun; Routinely check your whole body for changes in your skin; Educate your family and community about sun protection.

Perhaps even join a fundraising or educational effort like the SOSR in your area and help support the need for sun protection!


Video footage of the Stay Out of the Sun Run and melanoma survivor feature from NBC Rochester local news

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Congrats to our Coolibar team members who walked and participated in the 5K at the SOSR! You all looked spectacular in your Coolibar sun protection clothing!

Learn more about Skin Cancer and Melanoma from the American Academy of Dermatology

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