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2018 Coolibar Guide to Showing Someone You Care

“One in five Americans will develop skin cancer in the course of a lifetime.”
Skin Cancer Foundation

The need for sun protection is universal. Whether you live in a hot or cold climate or have fair or dark skin, we all need to be mindful of our exposure to UV rays. Coolibar recommends gifting UPF 50+ protection to the people you love most as a way to help them live a sun-safe lifestyle while enjoying the outdoor adventures they love most.

For tiny cuties who already love the water:

“Because babies have thinner skin, sunscreen is not recommended for infants under 6 months of age.”
Skin Cancer Foundation

For the “big kiddos” you love to the sun and back:

“Even one blistering sunburn during childhood or adolescence can nearly double a person’s chance of developing melanoma.”
Skin Cancer Foundation

For the sun protection-resistant men in your life:

“By age 50 men are more likely than women to develop melanoma. This number jumps by age 65 making men two times more likely as women of the same age to get melanoma.”
American Academy of Dermatology

For global-trotting sun seekers:

Travel destinations like Hawaii are starting to ban sunscreens containing chemicals harmful to coral reefs.

For adventures in and on the water:

“Many surfaces reflect UV radiation and add to the overall UV levels you experience. Water reflects 10%; sea foam reflects 25% and sand reflects 15% UV rays.”
– World Health Organization

For the garden party goddess that craves a touch of glamour:

“About 90% of visible skin changes such as aging, wrinkles, brown spots or leathery skin are caused by the sun’s ultraviolet rays and can be minimized by sun protective clothing.”
Skin Cancer Foundation

For someone who needs a little extra support:

“Melanoma is not just a skin cancer. It can develop anywhere on the body – eyes, scalp, nails, feet, mouth, etc.”
Melanoma Research Foundation

For EVERYONE spending time in the sun

“For every inch of brim you wear, you reduce your lifetime risk of skin cancer by 10%. So a 6” brim means 60% risk reduction.”
– Skin Cancer Foundation

 

2018 Holiday Gift Guide

 

 

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Experts Say

Did You Know: More Men are Diagnosed with and Die from Skin Cancer than Women

Dr. Arthur Ide is the owner of Dermatology, P.A. in Minneapolis, Minn. He is board certified by the American Board of Dermatology and is an Adjunct Associate Professor of Dermatology at the University of Minnesota. He currently has four children and lives in Minneapolis.

 

More men than women are diagnosed with AND die from skin cancer. As dermatologists, we ask ourselves why. Is this a societal issue or does it have to do with biology? What is going on here? It’s a little bit of everything, to be honest. Men are the underdogs when it comes to health and wellness.

Our best approach is to look at five key issues behind this statistic and find solutions.

 

1: Men contract skin cancer differently than women

In general, men and women have different relationships with the sun. Many women seek out UV rays in an aesthetic way. Roughly 8,000,000 women tan indoors when they’re younger compared to 2,000,000 men. Men are more likely to contract skin cancer following a lifetime of sun exposure while engaging in outdoor activities like swimming, fishing or golfing.

SOLUTION: Teach men young and old to care for their skin. If your internal response to that suggestion was “yeah, but how,” I get it. Teaching men to adopt healthy skin habits can be tough. We almost always recommend skin protective clothing instead of sunscreens or lotions. Arm them with the tools that will protect them even if they forget to protect themselves.

2: Men are diagnosed much later in life than women

In part because of the difference in sun habits between men and women, skin cancer diagnoses are more common for women under the age of 49, and for men over the age of 49. Because skin cancer manifests itself at a younger age in women, they will often catch it before it spreads beyond one or two basal cells. Men who are diagnosed later in life will often have accrued multiple basal cells.

SOLUTION: Don’t let men wait! Getting your skin checked by a dermatologist should become part of everyone’s routine. Parents need to teach young people to care for their bodies inside and out. Adolescents learning to check their skin today stand a much better chance of detecting skin cancer when it counts.

3: When women see something, they say something. Men, not so much

Generally, women are champions when it comes to early detection. When they notice a change in their body, they take care of it. Often when a man comes to see me they’ve been ignoring the warning signs so long they’re a bit of a train wreck. We’ll find multiple cancers. The famous line we get from men is, “It didn’t bother me”, which is often followed by, “my wife made me come”. Well sure. Skin cancer doesn’t bother you until it’s killing you. This is a key reason why men’s mortality rates are higher than women.

SOLUTION: We need more watchdogs and evangelists. One of the troubles with detecting skin cancer in men is that it’s more common on their backs. Everyone needs to enlist the help of family doctors, partners and family to detect abnormalities in men.

4: Changing habits is easier for some (women) than it is for others (men)

When a woman comes to our office and discovers she’s at risk or has basal cells, she’ll act. Men are more resistant to change. I had one patient who discovered he had four basal cells on his back on his first visit. Despite this, I still can’t get him to wear even a standard cotton shirt outside 100% of the time.

SOLUTION: I’ve found that with men it’s helpful to show, not tell them what they need. Seeing is believing. The easiest solution is to arm them with clothing that will protect them even when they forget to. Our biggest hurdle with men AND women is to shift their dependence on sunscreen to sun protective clothing. What a lot of people don’t understand is that they need a protective shield that never fades or wears away. At the very minimum, we do our best to get women to cover their head, neck and shoulders and to get men to ALWAYS have a hat on while outdoors. The upper extremities are beacons for sunlight. Sunscreen alone will NOT protect them from harmful UV rays. They must cover up.

5: Educational information isn’t reaching men and women equally  

Information about skin cancer prevention and detection often falls under the heading of “beauty” or “wellness”. These aren’t categories frequently sought out by men. If I could get a sports reporter to highlight sun protection use in the stands at every game, we’d be in much better shape.  We need to get better at spreading the message to everyone that needs it.

SOLUTION: Support organizations like the Melanoma Research Foundation and The Skin Cancer Foundation. Their key purpose is to educate EVERYONE about the importance of skin cancer prevention and detection. Even smaller, local organizations make a big difference in terms of educating men and women about the threat of skin cancer and how to prevent it.

You can start by giving to one of these organizations for #GivingTuesday:

Support Awareness and Education:

Skin Cancer Foundation

Melanoma Action Coalition

 

Support Research:

Melanoma Research Alliance

Vitiligo Research Foundation

 

Support Awareness, Education and Research:

American Academy of Dermatology Association

American Cancer Society

Lupus Foundation of America

Melanoma Research Foundation

Polka Dot Mama Melanoma Foundation

 

Support Youth:

American Academy of Pediatrics

Children’s Melanoma Prevention Foundation

Richard David Kann Foundation

 

External Sources:

American Academy of Dermatology Association “Melanoma Strikes Men Harder”

The Skin Cancer Foundation (August 2, 2016) “Men Fall Short in Skin Cancer Knowledge and Prevention”

The Skin Cancer Foundation (May 30, 2018) “Men on the Hook”

HealthDay News (November 5, 2018) “World Melanoma Deaths Up Among Men, But Not Women”

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Together We Will

Together We Will… Navigate Skin Cancer Prevention, Detection and Treatment

Some people are born for the careers they choose. Others wake up one day thinking they need a change, then suddenly discover they’re meant to help save lives. That’s what happened to Dan Latore, Executive Director of The Skin Cancer Foundation. He’d never dreamed he’d work for a cancer foundation, but now his job is to dream up ways to elevate the Foundation’s purpose and mission.

COOLIBAR: How did you become the Executive Director of The Skin Cancer Foundation?

LATORE: I don’t think anyone grows up thinking they want to be the executive director of a cancer foundation. But twelve years after I joined the team here, I still love it.

C: You started your career as an ad and sales guy, what is it about The Skin Cancer Foundation that has kept you going for over a decade?

L: The results. They’re not about ROI on ad dollars spent or sales numbers, they’re about people. One of my favorite stories is about a woman who donated $20 on behalf of her husband Gus who had passed from melanoma. It was all she could spare, but it was important to her to give to an organization that could potentially help the next “Gus”. We hear stories like this every day. When you have the ability to touch people’s lives through the work you do, there is nothing more inspiring.

C: How do you do it? How do you and your colleagues continue to support this community in such an impactful way?

L: The work we do is so essential when it comes to helping people through every stage of diagnosis and from every vantage point, whether they’re a patient, doctor or caregiver. We literally save lives with early detection programs like Destination: Healthy Skin, our RV that travels across the country to screen and educate people about melanoma. SkinCancer.org is often THE source for information. Nearly 9 million people each year look to our website to get the answers they need. Our Seal of Recommendation and information—all verified by physicians and dermatologists—help break through the fear. Knowledge is power. We are all about empowering people to get the right diagnosis, the right treatment and the right help.

C: Donors and potential donors want to know…where does the money go and how do you decide how much is donated?

L: We’re 100% a people-driven non-profit. Every dollar we get whether it’s $20 from a personal donor or a $25,000 grant is meant to save lives either through education, advocacy or research. It’s our job to ensure that every donation is used in a way that is smart, efficient, impactful and durable. We’ve worked with the government and National Council for Skin Cancer Prevention to tackle issues like tanning bed regulations and FDA limits on sunscreen ingredients. We source and support “Young Investigators”, or doctors who are poised to make scientific breakthroughs. Most importantly, we educate people.

C: What progress have you seen on behalf of your mission?

L: Currently, the incidence of melanoma and skin cancer are on the rise, but mortality rates are falling. This is progress. We want more people to get checked and diagnosed early so that they can be treated, and lives can be saved. We’ve turned early detection into a trend alongside rash guards for children, higher SPF in retail stores, and sun protection clothing for sportsmen. We’re also seeing the impact of our “Go With Your Own Glow” campaign with celebrities embracing their natural skin tone and devaluing the beauty standard of tanning.

C: Can you share a personal story about the important work SCF does?

L: There have been SO many stories! One that stands out is Linda Nagel. Linda lost her husband Todd Nagel, to melanoma ten years ago when he was in his mid-thirties. Since then she has hosted The Todd Nagel Open, a golf tournament that raises about $25,000 annually for skin cancer research. With her help, we grant the amount to a “Young Investigator” poised to make a difference. I look forward to the day when one of Linda’s doctors makes a breakthrough in honor of her late husband.

C: What is the most important thing you want our readers to know about the Skin Cancer Foundation?

L: We’re here to help. One of our most vital assets is SkinCancer.org. Google “skin cancer” and you will get a large number of resources available. When someone is diagnosed, they are overwhelmed and confused. Through our network of doctors, we can provide credible information and resources that support patients and caregivers in a way that is understandable. We work hard to help everyone find what they need quickly and effectively.  It’s all a part of our mission to save lives through education, prevention, early detection, and prompt treatment of the world’s most common cancer.

 

Latore and his team will be at The Skin Cancer Foundation’s Champions for Change Gala this Thursday, October 25th at the Plaza in New York City. To learn more about the event or to make a donation please visit: https://www.skincancer.org/events/gala.

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Skin Diaries

Nicole O’Neill: “I Was Fortunately Diagnosed with Cancer 3 Times”

It’s still hard to believe, but by the age of 30, I was fortunately diagnosed with cancer 3 times, faced over a dozen other precancerous scares and experienced some heart-wrenching losses due to cancer.

Yes, you read that correctly, I said I have been fortunate. You are not crazy.

However, I have not always felt this way. Each time there was a period of total fear, confusion and almost paralysis. I cannot quite explain what it is like to get that news and be afraid for your life. It truly stops you in your tracks. Everything becomes blurry, nothing seems to matter and all you can think is, “Am I going to die… Did I really live?”

But each time I was blessed with a whole new perspective on life. I learned so much more about who I was and what I wanted my life to stand for…

My first melanoma opened my eyes to how little self-confidence I had and how superficial my life was.

I am totally guilty of spending countless hours in the sun, tanning booths and wearing the oil. Truthfully, I didn’t really know any better when I was younger. Even though I had a handful of spots removed in high school, it didn’t really sink in until I was diagnosed with my first melanoma at 24. Looking back, all I remember was that I felt so much better about myself when I was tan. I was very fortunate that we caught the melanoma early enough, so surgery was all that was necessary. But so much changed with this diagnosis. Suddenly, I became aware of the superficiality of my life. How much of my self-confidence came from “being tan & looking good”. I consider this my first wakeup call in life. If it weren’t for this diagnosis, I may have never started to take better care of myself from the inside out. I learned to make self-care a priority, and more than anything it started the journey of true self-love for me. It made me want to be a better person and with that I learned that beauty and confidence are about so much more than what’s on the inside.

My second melanoma woke me up to just how precious life is.

After my first melanoma, my health and sun safety became a top priority. You can imagine my frustration, my fear when I was diagnosed with a second melanoma 3 years later. I remember thinking “but how!? I have been doing everything right. This is so unfair!” Initially, it was numbing. But then, once I processed the news, I realized pouting about it wasn’t going to change it.

After my 2nd diagnosis, I made a promise to myself… I’ve been given another chance here. This life, it’s not something I am going to waste. With that, I started to live with the end in mind. You could say I started to live a bucket list life.

I couldn’t be in the sun anymore, but I could be more adventurous. It sparked my passion for new activities way out of my comfort zone.

It helped me shift my priorities… I stopped putting work first and spent more time with my friends and family.

I refused to just go through the motions and put off all the things I really wanted to do. Instead, I started to be so much more proactive with my life. I started a business that would allow me to feel more fulfilled, made traveling a non-negotiable, became more charitable, committed to ongoing growth and I could go on. You could say I completely leveled up my life after my 2nd melanoma and looking back the diagnosis was a catalyst that changed the trajectory of my whole life in such a positive way.

Over the next few years, I would face a couple more pre-cancerous scares and then be diagnosed with thyroid cancer when I was 30. We still to this day are not sure if that was related to the melanoma. But I am forever grateful to my dermatologist for his care and help through this time. This was probably the fight that hit me the hardest. Truthfully, I was pissed. I was sad. I was terrified. And then when I almost lost my voice… I was broken.

Getting through this time was tough, but what finally pulled me through was finding a spiritual outlet and thinking of all the people who had not been so fortunate in their own fight. I could go on and on telling you about all the lessons and life shifts cancer has exposed me to. But the most powerful thing I learned is that bad things happen. There might be times when life tries to knock you down and you cannot control that. However, what you can control is how you choose to react to it. You can choose to crumble, or you can choose to feel the emotions, feel the fear and the pain… but then let it wake you up in life and use it as a catalyst for living your life more intentionally.

We all only get one life and it’s ours for the taking. I pray you never have to face such terrifying wakeup calls, but if you do, please know that there is some positive that can come out of it. It might be hard to see initially when you are trying to navigate through the fear, but you are powerful, you have a purpose here. Have hope, fight like hell and focus on doing whatever you can to move forward, even if it’s just one tiny step at a time.

XO Nicole

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Together We Will

Together We Will… Fight for Our Family and Others

As part of our “Together We Will” series, Coolibar had the opportunity to talk to Steven Silverstein about his journey from a shocking stage-4 diagnosis to today. Here is Steven Silverstein’s remarkable story in his own words.

“I always went to a derm. My sister is a derm. Even with that, I still had stage 4 melanoma that was misdiagnosed by my dermatologist and a plastic surgeon,” said Steven Silverstein as the conversation started. “I had something on my face that had been removed and it didn’t go to a lab, labs weren’t standard back then,” he said. “Sometime later, I had swelling on my neck and got a needle biopsy.” By then the cancer was in his liver and the doctors told him not to bother having surgery. “Why go thru that?” they said. They wrote him off. But they didn’t really know Steven Silverstein.

“Here’s the thing, my daughters were 13 and 16 when I was diagnosed. I wasn’t going to give up without a fight. I wanted to get as much of the tumor burden out, tumor out, so I decided to have the neck dissection.” Steven told us that there were no clinical trials at that time, so after his surgery, he did a “chemo cocktail”, which did not work, then direct chemoembolization to his liver.

“What I wanted was a systemic approach, a protocol,” said Steven, sounding frustrated and impatient. After his chemo, he started researching options. Interleukin-2 (IL2) was available but its reputation was brutal. “I was told it had a 6% survival rate for someone in my situation,” Steven pauses, the memory hangs in the air. The regimen was brutal. “I would go to the hospital for a week, get IL2 every 8 hours for seven days, then go recover for three weeks before starting another cycle. My hospital time was spent in the intensive care unit for 4 cycles, over 4 months, and I had lots of challenging side effects.”

With limited options left, Steven was forced to sell his family business to protect his family and other interests. After all that, Steven asked his doctors if there was anything proactive he could do. He did GM-CSF, a drug used to fast-track the recovery of white blood cells following chemotherapy, for two years. But, once again, there was no protocol. The use of clinical protocols allows doctors to offer appropriate treatments and care. In typical Steven fashion, he turned a dead-end into a turning point. “I was curious about how drugs get to the doctor’s practice. Why were there medications that sounded so promising, yet weren’t tested and approved for melanoma?” He had found his mission.

Today, Steven Silverstein is a 15-year survivor of stage 4 melanoma. He’s also the Melanoma Research Foundation’s Chairman of the Board and his story underscores the MRF ’s mission to “transform melanoma from one of the deadliest cancers to one of the most treatable through research, education and advocacy.”

Steven is determined to see that the MRF funds grants with leading scientists. After all, “research” is their middle name. He has gotten to know many the doctors and scientists working to treat and cure melanoma. He is dedicated to making connections for people, to get them the kind of care he had to unrelentingly fight for himself.

Steven tells us he got involved with MRF because they’re patient-centric and grassroots. “It resonated. I like the buddy program, meeting people and working with them 1-1. The local events keep it real and it’s very gratifying to help other people.” In fact, MRF has a community fund-raising toolkit for smaller markets to do events, inspired by a personal story. “I spoke with a woman in a remote area who had lost her son. She apologized for only being able to raise a small amount. She does a pizza party once a year, educating 20 or so people about melanoma prevention. Well, I couldn’t accept her apology. Because, within a few years, she had educated her entire community about sun safety and melanoma! So, the money was really secondary!” He continues, “THIS is MRF. It’s not just about the fund-raising, it’s about education, dollars raised AND people touched.”

In addition to the MRF’s science grants, education materials and symposiums, the organization promotes advocacy. In 2009, MRF started a program through the Department of Defense, including 4-5 cancer groups sharing 4-million dollars. Today, through their continued advocacy efforts and the help of the great team at the Melanoma Research Alliance, that number has grown to $80 million to be shared between 17 cancer groups. Steven proudly notes, “Out of $250M of research funding to 2017, melanoma got $50M. MRF also funds $1-1.5M per year themselves.”

Steven Silverstein, MRF Chairman of the Board, is a volunteer. He tells us that 60% of their board members are stage-4 survivors. They are patients from various trials over time. They are all volunteers. They are all warriors.

Steven started this journey when his daughters were teenagers. He has now lived to attend both of his girl’s weddings and hold his first grandchild.

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Skin Diaries

Betty Hall: “Sunburn after sunburn, I never learned my lesson.”

As far back in my childhood and adult life as I can remember, I have had countless sunburns. I have had some so severe that it hurt to wear clothes or lay down. One time, when I was a teenager living in Midland, Texas, I put on shorts and a backless halter top and thought I would surprise my parents while they were at work by trimming the edge of the lawn. We didn’t own an edger to trim the yard, so I did the entire front lawn with a pair of sheers while on my knees all day and my back and head uncovered. My back later that day was covered in huge water blisters from being so sunburned! From vacations to family outings, there have been numerous times that I burned in the sun and ruined the entire occasion. None of those times did I put on sunscreen or cover my head with a hat. Heck no, that would look stupid, I sadly thought. Later as an adult, I would visit the tanning beds in the summertime so that when we went on vacations, I would have my body use to the rays and I thought that would keep me from burning as bad. It would work sometimes, but little did I know that all the past UV exposure would soon come back to haunt me.

1997 was the year it all started, my beautician found a tiny red spot on the top center crown of my head. It was merely a small, red spot! No itching, no bleeding, no scabbing. My MD referred me to a Dermatologist whom I saw for a biopsy. Two long weeks later, he called me at work to tell me he found cancer cells. Just that word alone was upsetting. I went back to that same Dermatologist to have a larger biopsy on the same area done with even more stitches. He sent it off to the lab and sure enough, another two weeks passed again and he called to let me know the cancer cells were still present. I was scheduled to see him a third time when right before my office visit, word had travelled to my husband’s boss, who happened to be head of surgery in El Dorado, Arkansas. They quickly prepped me for surgery as soon as I arrived. They did a scalp sweep and did a skin graft off my right thigh to cover the bone. Over a hundred stitches and a metal cap later, the surgery was finally over.

The procure may have been done, but nothing could’ve prepared me for what I would see in the mirror. To be fair, how could you ever tell someone they had a 2-centimeter-deep hole on the top of their head and explain to them that the hair would never grow back. It’s a tough pill to swallow to know that this was the result of my careless past. But, my surgeons said they were hopeful they got it all and at the end of the day, I was lucky this tiny, red spot was caught.

Over 20 years have passed since then and I’ve dealt with numerous other surgeries along with hundreds of appointments. I cannot blame anyone but myself for what I have done by being unprotected all those times in the sun. Sunburn after sunburn, I never learned my lesson. How foolish! I wish I could go back and undo the wrong but I can’t because the damage has already been done. But if you’re reading my story, it’s not too late for you. Educate yourself on the dangers of UV exposure. Take time to put on sunscreen or a hat. Don’t lay out in the sun to get a tan or in a tanning bed just to look good to your peers. Check your body whenever you get a chance.

Learn more about Betty’s story.

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Skin Diaries

A Game She’s Not Ready to Lose

My name is Lisa Pace. I’m a college basketball coach and a licensed massage therapist. I found out I had skin cancer at 23 years old. I had just gotten my first division 1 college coaching job.

I was talking to my mom one night about my job and all the responsibilities, and in conversation she told me now was a good time to see the doctors so they have a baseline of my health moving forward.

So, I made an appointment to a dermatologist. They did a skin check and found a couple places, small light brown spots, that they wanted to biopsy. They did the biopsies and told me they would call and let me know the results. I figured since I had fair skin, red hair, and freckles, this was probably common. I didn’t know. I think at my young age I was trying to rationalize and justify why I had skin cancer. Later on, I found out anyone can get skin cancer.

It was time for recruiting. I couldn’t wait! July was finally here and I got the opportunity to travel from state to state, gym to gym watching young women play basketball. I was headed to Las Vegas. This was a huge tournament. I sat beside the legendary Pat Summitt and watched some games, and went from gym to gym all day. I couldn’t believe this was my job.

Later that night when I returned to the hotel room, I checked my messages. The dermatologist had called and said they had the results. When I spoke to them they said my biopsies came back suspicious, that they were skin cancer, possibly melanoma, and that I needed to come in and let them take more out.

I remember thinking, the last time I was at the dermatologist, it was a little bit of numbing medicine, a small cut, and a band-aid. There is no way I am leaving Las Vegas to go back and let them do that again. I am recruiting. I am watching future division 1 players. It can wait. So I waited. I finished up recruiting in July and made an appointment when I got back home.

This time it was different. I went to a specialist for a second opinion. They went back in the same spots, but took a huge amount out of my leg. It was my right upper thigh and my lower calf. I had stitches, bandages, bleeding, bruising, swelling, and I had crutches. Well, that was definitely different. I knew I would have these crutches for a day or so but as a former athlete, those things had to go. I didn’t have time to be “injured.” But the good thing was, they said they got it all. This meant no more skin cancer, so I thought.

It took a while, but I healed up fine. I continued to coach, and I continued to tan. Tanning beds were popular. I had tanned a lot in college. There were all kinds of promotions with free lotions, buy 5 visits get 5 free, one month unlimited, etc. I enjoyed going. As I got older, I didn’t go as much. However, the damage had been done and those times I was still tanning was just adding to my future surgeries. I had no idea that the tanning bed was causing so much damage to my skin. I never saw any tv commercials warning about tanning bed use and skin cancer, there was no social media platforms warning me of the danger and consequences.  I don’t remember much being said about it at all in the beginning.

One morning I found this white spot on my left cheek. I watched it for a couple weeks and noticed it was getting bigger. So I went back to the dermatologist. This changed my life. They took a huge chunk out of my face. I was devastated. I couldn’t look at myself. I spoke with my doctors and after much discussion, I found out that all those times going to the tanning bed had caused me to have skin cancer. This was the first time anyone had discussed this with me. Remember, this was almost 20 years ago. I had done this to myself. I questioned every time I had ever wanted to go tan. Why did I do this? I didn’t lack self-confidence, I just wanted to have a bronze look and to “fit in.” I knew better than to “follow the crowd.” I was supposed to be a leader, to set examples for others. Now look at me. I was so angry at myself. And this was just the beginning, more and more surgeries would come.

Fortunately for me, I was coaching college athletes and we know we have a choice every day. When we wake up we choose to have a positive or negative mindset. We choose to win the day or wallow in self-pity. We outwork our competition. And skin cancer was my competition.

Fast forward almost 20 years, I have had 86 skin cancer surgeries. My skin cancers have been basal cell, squamous cell, and melanoma. I won’t tell you that I was positive every minute of every day. The mental aspect after surgery can be draining. I did have moments when I didn’t want to get out of bed, when I would look at all my scars and get discouraged.  I dreaded looking in the mirror because I thought I would find a new skin cancer.  But those moments didn’t last long.

I know I’m going to win this battle. I know I do all the right things as far as protecting my skin and getting skin checks so I am confident in knowing skin cancer has met its match. It’s going to be a battle with me.   And I want people to be proud of their own skin. I own my scars now. They have given me wisdom, they motivate me, and they remind me that even though I was knocked down 86 times, I got back up 87 times.

I can only hope my story will inspire someone else to make the necessary changes in their life to protect their skin, to get regular skin checks and to win the day.

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Skin Diaries

The Race of a Lifetime

At 26 years old, Grace Pophal is a daughter, sister, niece, partner and friend. A lifelong competitive swimmer, she entered Ohio State University in the fall of 2010 as a Division 1 swimmer with a lifetime of possibilities ahead of her.

During her time at school, she struggled more than ever and no one could figure out why. In October of 2015, they received the answer. After experiencing prolonged and severe back pain with migraines, a doctor’s appointment was made and x-rays were performed. Within a week, Grace was diagnosed with Stage 4 Metastatic Melanoma. Five tumors were found in her brain, while her back pain was caused by a tumor on her lung so massive that it was putting significant pressure on her spinal cord. Tumors were also found in seven of her other organs. Subsequent treatment with radiation caused swelling, and Grace underwent emergency brain surgery to remove the two largest tumors causing pressure on her brain. By November 2015, Grace’s future looked hazy.

Moving forward, Grace is still here and continues to fight every single day. She was treated with an aggressive form of targeting pills and has been hospitalized several times with side effects, but her tumors have all been significantly reduced in size. A successful second brain surgery was performed in June 2016 and she would shortly after begin her first course of Immunotherapy treatment.

Grace’s Interview with WKYC

Her journey has been filled with blood, tears, heartache, celebration, a pup named “Otis”, hospital socks, ice cream binges and too many body scans to count; and there is still a long way to go.

Today, Grace has no active tumors in her brain, is a yoga teacher and receives immunotherapy treatment every other week. She’s faced every challenge this diagnosis has given her with unbelievable courage, strength, humor and determination, and continues to fight for her future.

Grace has also been working on fundraising for Melanoma research and was a big part of the Miles for Melanoma 5K Walk and Run to be hosted in Cleveland at Edgewood Park!

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This is Brave

This is Brave: Coolibar Inc.

CEO Kendra Reichenau and Coolibar are DETERMINED to change the statistics

The reality is, one in five Americans will develop skin cancer by the age of 70 and one person dies of melanoma every hour. These statistics are harrowing.

On Melanoma Monday, May 7th, we revealed a limited-run tee shirt in support of our mission to keep the world safe from sun damage. The proceeds from the sale of this commemorative tee shirt, inspired by a 10-year child impacted by a melanoma diagnosis, will go directly to the Melanoma Research Foundation in support of research, education and advocacy.

After a skin cancer or melanoma diagnosis, life alters dramatically for the individual and everyone around them. It takes courage, determination, and advocacy to elevate the fight against this terrible disease in the hope of one day extinguishing it. For the month of May, we have joined forces with some of the true heroes in this fight, who have bravely come forward to share their real-life journeys as skin cancer and melanoma warriors. Depicted in photos and written in their own words, each story brings the reality of this immoderate disease to life, utilizing the most powerful insight.

We are honored and humbled to share these stories with you to raise awareness and encourage you to join us in the fight.

Together we can change the statistics. Be DETERMINED.

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Skin Diaries This is Brave

This is Brave: Norah O’Donnell

I never thought I would hear the words that I had been diagnosed with melanoma, the deadliest form of skin cancer. And I admit, the first thing I did was cry. And then, I felt really sorry for myself. It took some time but then I realized that as a wife and a mother, I had to be strong.

But it is difficult to be strong when one feels incredibly vulnerable. My diagnosis was the first time I confronted my own mortality. It was also the first time I think my children did as well.

“So, wait, you have cancer?” asked my 8-year-old daughter Riley.

“Yes, but we are going to cut it out!” I replied optimistically.

“Is there any chance you can die from the surgery?” asked my 9-year-old son Henry

“I’m absolutely not going to die,” I assured him. “I mean, eventually I will. But not from this surgery.” When I left my daughter’s bedroom I felt horrible for sharing with them that I was having a relatively minor surgery. There was no need for me to worry them.

But I was scared and, perhaps selfishly, really appreciated their deep concern. Over the next few months after the surgery, my daughters, Riley and Grace, took turns at putting a healing ointment on the scar on my back, which I couldn’t reach.

“Oh mom, it looks soooo much better today,” my darling Riley would say, providing such positive feedback.

My dermatologist, Dr. Elizabeth Hale, made the diagnosis early. I had the surgery January 2017, which included a 3-inch incision and about 25 stitches. The scar has healed, but is still quite visible. It is a reminder that early detection saves lives.

Part of my preventative care now means that I return to Dr. Hale every three to four months for full-body checks to make sure there’s nothing out of the ordinary. Each visit requires the strength to confront the scary possibility that she will find another malignant mole.

The reality is that I can prevent a truly devastating diagnosis now with frequent check-ups. The harder truth I’ve come to learn is that I could have prevented the cancer altogether.

“More people develop skin cancer because of tanning than develop lung cancer because of smoking,” Dr. Hale told me. Just think about that.

Well, I am doing more than just thinking about it. I’m telling my children that while skin cancer is the most common form of cancer, it is also the most preventable.

I grew up in San Antonio, Texas, where jumping in the pool wasn’t just leisurable, it was one of the only ways to cool off! With the temperature pushing 100 degrees in the summer, we spent hours in the pool, many times without sunscreen. In high school, I would visit a tanning salon during the winter. I confessed this history to Dr. Hale who told me, “People that indoor tan before the age of 35 years have a 75% increased chance of melanoma.”

I know I made some bad choices. Those attempts to get a tan likely led to my cancer. But by sharing this with my children and others, I hope that my story can help all of us learn some valuable lessons and have the strength to embrace prevention.

Skin Cancer Facts can be found at http://www.skincancer.org/skin-cancer-information/skin-cancer-facts

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